Praise God, John John went through the insertion of the breathing tube and surgery fine. He went in around 12 and came out by about 4:30. What we thought was going to be horrible (he's had a breathing tube before) actually makes him look so much better then before. Tonights nurse came in and told me she didn't realize what a handsome man John was last night because of the mask. His color is back, his breathing is relaxed (the machine is doing most of the work for him) but we're averaging 15 a minute. And what I think is best of all is his heart rate is down! His chest was beating so hard yesterday when i touched it that I was afraid for it! Apparently so were the Dr.'s which is why they said they needed to put in the tube regardless of whether he had surgery today or not. The other good thing is they put in a feeding tube as well. This will put food straight in his belly as opposed to the IV drip which put nutrients in his blood. Hopefully this will curb his appetite. He hasn't eaten or drank anything since Sunday. He's a 14 year old boy. He's hungry! The only thing with the tube is they have to keep him pretty heavily sedated. I'm not sure the complete logistics yet because I missed the initial conversation, and haven't wanted to push mom to talk about it more than necessary. I don't know when the initial dose wears off... but when it does the sedation level will depend on how he wakes up. They said because of the discomfort the tube can cause they tend to keep people pretty sedated on it. When i get better details I will update!
Please pray for all the tests they are running when he's like this! That they can find the answer, we can remove the tube, treat him, and take him home back to 100%John. The tube makes the procedures easier because 1. it's a passage way into his lungs they can use for a camera to go in and look, and 2. because john doesn't have a chance to get anxious about what they are doing which makes his levels drop, and them unable to complete the procedure.
John John moment of the day! -- (we cherish the moments when we see his personality shine through) As they were taking him down to surgery, mom went to take her blanket off of him (the hospital ones stink, so we had a nice, pretty, soft one on him. She didn't want it to go down cause it might get bloody. As they started to take it off he clapped... which is our sign for I need something (since it's hard for us to tell when he was talking through the mask... and it's been hard for him to talk with the mask). She said she would leave it if he wanted to go down with it... and he grabbed the corner and nodded yes! Then Mom kissed him and said I love you, can you say bye to mommy? and he said "bye mom and candace" -- when every word is effort to get out... it's a moment to cherish when he gives more then asked for and when he shows him John John self!
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