John john,mom and I have all safely arrived in Pittsburgh. We had a rough start when we got here on our end. The admittance people and all were not friendly at all. We got grief about me being related and you could just feel a tension in the air. We arrived before john and weren't allowed in for an hour. This put mom really on edge... we didn't know what they were doing and no one made any. Efforts at explaining.
After we got back to him things have improved. The drs and nurses have done a great job at showing us how they'll take care of john. They have put us at ease inside this room but were afraid to leave honestly. They have a one overnight guest policy.... so if I walk out to get bags or make a phone call (whichur not allowed to do in the rooom) they won't let me back in... I don't think they serve mom food here like at the other hospital... and as of now ronald mcdonald house has no beds... she says she's fine with me coming back but I can't leave her. This is a scary place,situation and all of the above...
Also one of the hardest things for mom right now is she promised him he would have to go through this... he wouldn't have to suffer anymore. The other night as they were sticking him repeatedly he looked at her and said mom u promised. She feels like she's failing him... I've been trying to talk it out and help her see tha u have to fight for ur kid and he understands that... but the question of when is enough enough keeps coming up.
John still has a horrible cough that's making him really uncomfortable. Its affecting his breathing. They said if they can get him to a lower dose of oxygen then can move him off. PICU and things will be easier for us there...
Please pray for all these things... well keep all posted!
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